How Tocantins with sickle cell disease can seek treatment through SUS

How Tocantins with sickle cell disease can seek treatment through SUS

June 19 is World Sickle Cell Awareness Day, a high-prevalence disease in the country and the world, about which the United Health System (SUS) provides comprehensive care in Tocantins. In the state, treatment is provided at the Hemorrede Tocantins hematology clinics, located at Palmas General Hospital (HGP) and the Araguaína Blood Center. The flow of access is through the SUS assistance network, completely free of charge, initiated in the Basic Health Units (UBS) and coordinated by the State Regulatory System.

Hemorrhoid Tocantins haematology units have trained multiprofessional teams, including: hematologists, pediatricians, physiotherapists, psychologists, nutritionists, social services, dentists, laboratories and a team of nurses, working in an integrated way to guarantee quality care to the user. Currently, 743 patients are registered in Tocantins.

Sickle cell disease is a genetic and inherited disease characterized by changes in red blood cells, which lose their rounded and elastic shape, giving the appearance of a sickle (hence the name sickle cells), which makes it difficult for blood to pass. through blood vessels and, consequently, oxygenation of body tissues.

The diagnosis can be made early in the child’s life, as explained by Rafael Sousa, a technician from the Specialized Care Administration, State Department of Health (SES-TO). “In neonatal screening of newborns, a foot test is performed, an examination at UBS. If there is any change in the pathology, the patient is referred for a confirmatory test, hemoglobin electrophoresis, to Hemorrhage clinics, which also offer treatment. The units are repeating this exam after six months, according to the protocols of the Ministry of Health, “he said.

HGP Hematology Clinic nurse Jaqueline Ourique Picoli points out that patients are monitored on an outpatient basis. “Consultations are optional and scheduled in advance, with doctors and specialists. “In emergencies and emergencies, these patients can seek help in the Emergency Room and Inflammatory Hospitals,” he specified.

medicines

In addition to multiprofessional follow-up, patients also have access to specific drugs such as folic acid, available from the municipal health network, ferroxymethyl pericillin potassium, supplied by the hematology clinic, hydroxyurea from the State Pharmaceutical Aid and other drugs also used in treatment. medical behavior.

Symptoms

Sickle cell disease can manifest differently in each individual. Some have only a few mild symptoms, others have one or more signs. Symptoms usually appear in the second half of the child’s first year of life and can manifest as painful crises, pallor, fatigue, jaundice, jaundice of the skin and sclera, hand-foot syndrome, swelling of joints and ankles, common up to two years of age, period of increased susceptibility to infections .


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